good life

decisions, decisions

decisions, decisions

i’m trying to figure it out. i’m trying to understand what i’m supposed to do. am i supposed to lead?  am i supposed to write?  am i supposed to interpret? most likely its all of the above. and mother. and wife. deep breath. there is […]

slay trick or you get eliminated

slay trick or you get eliminated

this summer there was internet buzz over the near eradication of down syndrome in iceland.  people wrote articles against eugenics and disability.  and i agree, it is terrible, right?  deciding that your child probably shouldn’t live because they may have down syndrome?  i mean, geez louise. mazzy wasn’t too concerned […]

a blog post about a person with down syndrome

a blog post about a person with down syndrome

i had a dream last night about bloggers who write about their children with down syndrome. some are so famous online that you’d recognize them in public. in the dream i was walking by lake michigan and a mother had set up her kids for […]

unanswered prayers

unanswered prayers

my dad was back in the stacks and the snow wasn’t stopping outside.  big, fat snowflakes falling themselves down on the lucky streets of ann arbor, michigan.  i looked over and saw my husband considering yet another collection of words to stick into his brain. […]

shall i compare thee to a summer’s day?

shall i compare thee to a summer’s day?

that will shakespeare really knew what he was saying. “And summer’s lease hath all too short a date.” ain’t it the truth? i decided that summer is like one long day and by mid-july i knew that the evening was coming on.  i told someone […]

april showers

there’s this part in the bible.  i think it’s in the old testament somewhere.  it’s god talking to his people.  he says that when they get to the promise land, when they get everything they want – even more than they ever knew they’d possess, […]

harry potter and true stories

we walked in a world created in one woman’s imagination. it was a real place. we heard languages from around the world spoken around, all of us lost in a shared reality that has come to mean so much to so many. we’d seen this […]

october reminds me of summer

the summer was good. yes, i’m still thinking about summer.  i still am processing that it’s over. we looked out the windows this morning and frost was holding fast to the top of the car, to the clover on the yard.  the heat has been […]

closing papers and the letter of the law

“sign here and initial here.” there are many papers to be signed.  we are buying a house, we are selling a house.  the closer across the table has a wide smile and glasses halfway down her nose. “this paper just says that if there are […]

what god thinks of down syndrome

this weekend held world down syndrome day within it.  3/21.  if ever there was a reason to dust off the ol’ blog, this is it.  a conversation with my dear friend, jamica, reminded me of what being mazzy’s mother has taught me, is teaching me […]