Category Archives: disability

slay trick or you get eliminated

this summer there was internet buzz over the near eradication of down syndrome in iceland.  people wrote articles against eugenics and disability.  and i agree, it is terrible, right?  deciding that your child probably shouldn’t live because they may have down syndrome?  i … Continue reading

Posted in beauty, disability, good life, mazzy, teenagers, the human heart | 5 Comments

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raspberry beret

a funny thing kept happening as we walked alone in rows of raspberries.  every spot we stopped to pick there would be a better one directly across the way. each time the very next row would hold larger berries, branches … Continue reading

Posted in beauty, contentment, disability, grief, hidden life, mazzy, outside | 3 Comments

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a blog post about a person with down syndrome

i had a dream last night about bloggers who write about their children with down syndrome. some are so famous online that you’d recognize them in public. in the dream i was walking by lake michigan and a mother had … Continue reading

Posted in beauty, disability, good life, mazzy, teenagers, weakness | 4 Comments

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here i am to worship, here i am to bow down

i smell her hair. strawberry shortcake. thin arms and legs with a head too large for any human body. i inhale and wish for the scented air i remember from the doll of my youth.  i would have taped that … Continue reading

Posted in disability, jesus, mazzy, mothering | 18 Comments

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a gift from mazzy to you

we were talking about the day that mazzy left the church with a family that didn’t bring her back into the building.  we told about how she disappeared and how we couldn’t find her. we shared  how stressful it was, … Continue reading

Posted in beauty, disability, forgiveness, mazzy, weakness | 5 Comments

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what god thinks of down syndrome

this weekend held world down syndrome day within it.  3/21.  if ever there was a reason to dust off the ol’ blog, this is it.  a conversation with my dear friend, jamica, reminded me of what being mazzy’s mother has … Continue reading

Posted in disability, faith, good life, love, mazzy, real life | Leave a comment

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the mother of god

one place in my heart holds a grudge against humanity and all my friends. weddings and birthday parties. whenever i catch wind of another girl’s birthday party happening with no invitation for mazzy, i plot a little murder in my … Continue reading

Posted in childhood, christmas, disability, forgiveness, friends, mazzy | 9 Comments

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what i’ll do instead

“the normal kids use these.”   mazzy’s classmate says this to me. she says it in the music room.  she says it without much thought because there is normal and then there is her – her friends, her class. i … Continue reading

Posted in disability, faith, mazzy, writing | 1 Comment

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the perfect christian life and anti-depressants

(this article originally appeared in catapult magazine.  the topic has been on my mind, so i thought i’d bring her back out and put a new dress on her.) A close friend knocked on our door a few weeks after … Continue reading

Posted in depression, disability, grace; free gifts, the church | 2 Comments

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dear vanessa

the difficult parts of life don’t come with instruction booklets.  it’s just us, hammering out the days we’re given with flesh and blood. it can be a messy business. add to the mix the odd desire to share that process … Continue reading

Posted in disability, mothering, thankful | 6 Comments

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