Category Archives: disability
a blog post about a person with down syndrome
i had a dream last night about bloggers who write about their children with down syndrome. some are so famous online that you’d recognize them in public. in the dream i was walking by lake michigan and a mother had … Continue reading
here i am to worship, here i am to bow down
i smell her hair. strawberry shortcake. thin arms and legs with a head too large for any human body. i inhale and wish for the scented air i remember from the doll of my youth. i would have taped that … Continue reading
a gift from mazzy to you
we were talking about the day that mazzy left the church with a family that didn’t bring her back into the building. we told about how she disappeared and how we couldn’t find her. we shared how stressful it was, … Continue reading
what god thinks of down syndrome
this weekend held world down syndrome day within it. 3/21. if ever there was a reason to dust off the ol’ blog, this is it. a conversation with my dear friend, jamica, reminded me of what being mazzy’s mother has … Continue reading
the mother of god
one place in my heart holds a grudge against humanity and all my friends. weddings and birthday parties. whenever i catch wind of another girl’s birthday party happening with no invitation for mazzy, i plot a little murder in my … Continue reading
what i’ll do instead
“the normal kids use these.” mazzy’s classmate says this to me. she says it in the music room. she says it without much thought because there is normal and then there is her – her friends, her class. i … Continue reading
the perfect christian life and anti-depressants
(this article originally appeared in catapult magazine. the topic has been on my mind, so i thought i’d bring her back out and put a new dress on her.) A close friend knocked on our door a few weeks after … Continue reading
dear vanessa
the difficult parts of life don’t come with instruction booklets. it’s just us, hammering out the days we’re given with flesh and blood. it can be a messy business. add to the mix the odd desire to share that process … Continue reading
telling kids (and moms) the truth
“something is wrong with my voice.” every once in a while mazzy will ask her dad or i this question. “what’s wrong with my voice?” and we know what she means. she means that she loves to sing, but when … Continue reading
girl versus the world and her mother
“let’s go around the room and say whether or not we’d abort if we found out we had a child with down syndrome. okay?” i’m at a book club. only two women in the room know my oldest child. i … Continue reading
