swan songs and resurrection

when we first moved into the city eleanor would say -

“these houses are too old, mom. they’re too old.”

and what of the suburbs with their houses too new?

i prefer old, i guess.  i prefer houses that mirror the human heart – or at least what seems to be the state of my own.

run down, needing help – desolate even on the best of days, plenty of opportunity to fix things up.  hoping for renovation from someone with enough capital, someone willing to invest.

that’s the way of detroit.  she asks too much of you.

but what do i know about the city?

i was raised in her.
i navigated her public schools from kindergarten until my folks decided to move to dearborn heights when it was time for high school.
i grew up in detroit.

i guess i know some.

detroit isn’t terribly clear about what she wants.  that’s the way of love.  you know you’re needed, but it’s going to take a while before you even understand how to give and how to receive.

a big part of life is just showing up, a big part of love of staying put.

mazzy walks backwards down the sidewalk.  she’s not ready to go inside.  the snow absent winter has got her thinking she’d like to ride her bike.  i tell her it’s too cold and she doesn’t believe me.  it’s not really true anyway.  a man walks past us and we are quite a sight.

a small girl with down syndrome in a pink tulle ball gown and her mother in the middle of the city.  he looks at us like we’re a television set.

“she’s practicing for her swan song.”  he says laughing.  and i know he means swan lake.

i agree and he smiles at us and keeps walking.

i know what he meant to say.

a swan song is a final gesture before dying.  and i guess there’s a lot of talk about detroit as if that is what is happening now.

but i knew what he meant to say.  he was talking about swan lake.

swan lake is a story of sacrificial love that that gives itself up to death with the hope of resurrection.

i’ve lived here five months and i’m still not sure how to write about it yet.

i don’t know how to put the city into words.  i need to try and to be brave, to say what i see.  i need to walk the streets alone at night when it hurts and remember that a perfect life is an oversight, a curse.

maybe it’ll take nine months to birth the life we’ve begun here.  maybe i need to stop caring about what my take on detroit will sound like.  maybe i’m chicken.

well, there’s no maybe about that one.

but you’ve got to be chicken before you can be brave, so it’s okay.  the time for the hard work of telling my side of the story, of hoping that someone hears what i meant to say, is coming.  but for now it’s just this beginning of the road towards home.

Posted in detroit, writing | 9 Comments

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life expectancy

i sat on the hospital bed holding a tiny new baby.  one by one social workers came in.  the first one asked how my marriage was and gave grim statistics about how disability in children was a leading cause of divorce.  i held the baby a little tighter and looked for the light coming in through the blinds.

the next one came with a packet of facts letting me know what i should and shouldn’t expect from my child.  but it was what she said at the end of it all that cut deep, maybe hit the hardest of all of the news of the past four days.

she said it as an afterthought, as if she almost forgot to mention it -

“her life expectancy is about 50 years.”

words can hit like a sucker punch and a mother fresh from a c-section isn’t in much shape to recover from such a blow.  so when she left the room, packet left on the hospital table, i held on to the limited life in my arms and wept.

50 years.

just given to me and the gift of her was being taken.  no parent wants to know the timeline for their child’s life.  and that they’d said it meant something to me that i didn’t know then, but i know now.

she wasn’t valid.  her life wasn’t like other lives.  and so her personhood wasn’t.  and that meant my motherhood wasn’t.  and so when i held my baby in a roomful of friends with their babies, i was always the imposter.  i thought we didn’t count.

yesterday she turned ten.

ten years of changing the woman who wept alone into a real mom.

real moms don’t know what a day will bring.
real moms hold throw up bowls and nurse sick children back to health.
real moms decorate for birthday parties that bring smiles when their children walk in the front door.
real moms see like god, can see in the ten year old the newborn babe there too, somehow all of their child’s life is always before them.
real moms help their children learn to read.

real moms have children with down syndrome.

thank you, mazzy.  happy birthday.

gratitude list ~ one thousand gifts ~ 1223 – 1247

john watching the dark crystal
mazzy’s bracelet
sharing space
birthday crowns
adamski hospitality
watching for the holy spirit
week flying by
hot showers
sharing stories
advil cold & sinus
at the pub with laurel
brunch with erika and vince
praying at traffic jam
kleenex
sharing food
coffee
bag of sleep
vacation next week
ella sharing her feelings
rebecca, again
shannon, so true
jesse
sharing vision
dinner with tyrone and karen
mazzy turns ten

Posted in childhood, disability, mazzy, thankful | 8 Comments

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z + j

i have a crush on john the baptist.

with his clothes made of camel’s hair and his leather belt around his waist.  this last of the prophets – the final one that recognized jesus in utero.

i would have come to the river jordan and been baptized.  i know i would have – and i would have stayed.  hanging around the other john the baptist groupies, feet dangling in the changing water.  my eyes unable to stay on the person i was talking to.  i’d be looking for john, i’d be watching the show.

i would have shouted amen a little too loud when he yelled at the conservative religious types.  when they showed up to find out what was happening and john called them snakes with nothing in their lives that proved their love for god.  i would have shouted amen, hoping to catch his eye.

i would have brought him bowls of fresh locusts and wild honey.  i would have lingered too long and it would have been awkward.

because he only had eyes for jesus. 

the day that his cousin came up over the hills, we would have noticed the change that came over john as we heard him say,

“i need to be baptized by you and you come to me?”

and the moment that jesus went under the waters, so did my hopes of a realized crush. my heart would have drowned and been raised back up as the heavens opened and we heard a voice say,

“this is my son, whom i love; with him i am well pleased.”

then the true source of my affections would be known.  john was a sign pointing at what was to come – the only prophet who had the messiah walk right up to him in the middle of a doomsday speech.

and like when the fickle crush of a girl gives way to love, i would have waited for word of what jesus was doing next.  i would find out where he would be and i would run through the streets at night because i am my beloved’s and he is mine.

Posted in jesus, the gospels | 2 Comments

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intentional love

“are you willing to give up your other passions so that people can hear about jesus?”

well wouldn’t you know it.  i thought there for a while that there was no further to go.

i knew that when i bowed my head that one morning in our kitchen and prayed, “god, do whatever you want to with this family.”  i knew that things changed, that life slipped and that those words, that prayer, meant there would be a reckoning.

but i didn’t know.  not really.

there are dreams i’ve had for my life and i’m not sure anymore that i get to keep a one. zena, wonderful mom.  zena, talented writer.

what if even the things i hold most dear get a backseat to this:

zena, evangelist.

this might be what god has in mind.  and like moving into the city, i’m just not terribly good at it.  backed by the very sure knowledge that no one wants to hear it.  but again the spirit pulling forward saying that isn’t the point.

being told no.  getting comfortable with the awkward.  the very awkward.  being disregarded – all for the hope of what?  good question.  heaven? right now?  good old fashioned revival?  people praying the prayer?

no.

to obey you, lord.

to do what you do, jesus.

to seek out those who do not know they are loved and say, “i love you.”

heart on our sleeves, agendas thrown out, just getting over ourselves to meet up with what god is doing.  this is going to hurt, but i have faith.  at least, i think i do.

i can’t believe jesus uses my small attempts.  in fact, i don’t believe.

so lord, help my unbelief that anything of my faith could translate to someone else. prove me wrong and let me be a part of the ability you have to draw people to yourself.

linking with ann today

Posted in me, spirit of god, the church, weakness | 4 Comments

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columbus

i drive back into my city.  detroit.  fresh from ohio.  fresh from the farms and the fields of the drive from there to here.  from the fresh air to the incinerator.  from the church of thousands to the church waiting to begin.

it’s about time to start.

my girls sprawl on blankets and pillows and i build a fire.  the snow has melted from the night before and our snow shovel was stolen off our front porch.  i don’t care at all.  when you’re priviledged, you don’t even know you’re priviledged.  i can buy a new shovel.  i can buy two and leave another one out front for the next person who maybe can’t this winter.

i don’t care at all.

let’s just roll up our sleeves today.  let’s get down to the hard work of trying to love.  this is going to hurt, but what else are we going to do?

we have all the time given to us to try.

gratitude list ~ one thousand gifts ~ 1207 – 1222

chris making breakfast
talking with jay
stout
church planting solved!
phone calls home to happy kids
worshipping
new books
dinner with steve
talking black and white church
insoo kim
going first
jeni’s ice cream
learning the soundboard
prayers for courage
being desperate
listening to the spirit of god

Posted in detroit, thankful, the church | 3 Comments

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the habit of weakness

“he is the most vulnerable of people.  and my experience today is much more about the discovery of how vulnerable god is.  you see, god is so respectful of our freedom and if, as the epistle of john says, that god is love, then anyone who has loved in their life knows that love forces you to become vulnerable.”

- jean vanier’s response in an interview with krista tippet
when asked, “jesus asks, ‘who do you say i am?’ and i’m wondering
how would you answer that question now at age 79.”

“so really the first meeting i had with people with disabilities, i was teaching philosophy at st michael’s college in toronto, and what touched me was their cry for relationship.  some of them had been in the psychiatric hospital, others had…all of them had lived pain and the pain of rejection.  and what touched me was, ‘do you love me?’ ‘can i be your friend?’  it was an immense cry for relationship.  this was a very different cry than my students in philosophy who just wanted to use my head in order to get on with their own pursuits.  so i saw here, not men who are wanting power or success, but it’s a cry here for love.  and this touched something very deeply within me, because it was a discovery that the cry of god is also, ‘do you love me?’  it’s the same cry.  one of the words of jesus to peter you find at the end of the gospel of john is this, ‘do you love me?  do you love me?’  so there’s this cry of god saying ‘do you love me?’ and the cry of people who have been wounded, put aside – who have lost trust in themselves, they’ve been considered as mad and all the rest and their cry is ‘do you love me?’ – and it’s these two cries that come together and i was deeply moved.”

- jean vanier talking about when he first encountered people with disabilities

i wonder at my own deflection of weakness today.  i think i am drawn to those without power for various reasons.  it may be that is how i write as well, as someone who has experienced being powerless.

do i know it of god?  do i see god as weak?  as vulnerable?

maybe that is what draws us to or repels us from jesus – his vulnerability.  he stands at the door and knocks.  if you hear him.  if you open the door.  he will dine with you and you with him.

if.

over a year ago now, i began to feel that the pressures of my life were too great.  i had to care for my child with a disability, i was quick to anger, i was giving over to anxiety in public in a way that seemed crippling to my interactions, i was still living with the memories and grief of living through childhood sexual abuse.

it all added up to needing a cure.

a willing, helpful doctor gave me a prescription and though i’ve never felt complete peace about it, i’ve been taking it ever since.

but what about embracing my weakness?  what about it?

how vulnerable am i comfortable being?  even if my vulnerable state is too messy? what if i interpret reality with a sinister edge that may or may not be there?  how willing am i to reach out to friends or those closest to me and say, i’m weak – i need your help?

and who am i rejecting that is currently saying that to me?  how well am i answering the cry of those around me, the cry that echoes god’s heart -

“do you love me?”

i listened to this interview with jean vanier yesterday.  he is the founder of this community.  and it was so good.  it’s wonderful to hear out a person who is living life with eyes set to honor the marginalized.  he calls such a life, “becoming human.”  and if you have five minutes to spend getting to know just a bit more about him – watch this short video called – become weaker.

the conviction i walked away with after watching the longer interview was – how am i numbing pain these days?  my own, the pain of others – how am i pushing the ear plugs in real deep so that i’m not too disturbed by the cry of those in need, of myself in need? i’m wondering how much more i’m interested in keeping up a strong front versus letting those around me know that i’m fragile, that i am weak.  letting those i love and that love me know that i am not perfect, i need help, i need you.

i am like the man with the withered hand.  jesus says come here and i do.  he asks me to stretch out my hand.  the one that i keep so close.  the one that i hide under my clothes. the one i pretend i do not have.  jesus stands near with love like i’ve never known and so i stretch out what i don’t want others to see – and i am healed.

i’m praying about these things.  i’m letting them reside.  they’re taking up residence, moving in and unpacking their boxes, setting up their things.  i want to find the truest jesus, follow the most real one.  vanier’s words strike at the core, they are counterintuitive and bold- and yet spoken with so much humility.

much like the holy spirit.

it seems a barely tread trail through the woods towards home.  i want to try to follow it.

linking up with emily and ann today…

Posted in community, depression, disability, jesus, weakness | 8 Comments

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it seems i can’t thank you enough

i’m walking and i’m trying to remember who god is.  i’m talking to myself and wondering if any of my prayers are making it up past my head.

slow it comes to me how big god is and how able and how good.  i lay all my hopes and fears before him and i watch the cold water flow unfrozen in january.

gratitude list ~ one thousand gifts ~ 1175 – 1206

tim holding violet
grief and worship conference
seeing joann
hard conversations that lead to truth
wire transfers
merz dates
believing the best about someone
john over too early
the sugar house
phone calls with cheryl lynn
abe singing the 50 state song
locks on doors
time to write
olive trees
sin that shows us our need for jesus
cold water
mary bringing all the food
up north next month
building fires
mazzy back to school
the big breakfast
a husband who provides so well
fresh milk
getting out of nursery duty
missing mandy
gelflings
shannyn
columbus this week
a husband who fathers so well
talking late with the martins
making beds

Posted in beauty, god, thankful | 1 Comment

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be brave, dear one

it’s strange about a scar.

the flesh heals and holds the mark of what the body endured.  most of the time we forget about it.  my hands and my feet and my heart engage in the right now, in the everyday.

but sometimes.  sometimes when the weather is melancholy or if i bump against a scar just so.  just so. then i’m confused by the pain until i look and remember, oh yes.  the healed wounds we all live with.

our design is such that our healed wounds can’t be denied, they can’t be hidden.

paul tepper says this ~

“what’s in question is not whether or not god will forgive you, it is will your heart become so hardened that you don’t care what he thinks.”

some scars are just mishaps, pointless.  others are as deliberate as a scalpel.  our bodies walk around like novels with stories under our clothes to point out and retell about the times long ago.

does the soul scar?  

could it be that a hard heart is only so much scar tissue?

because i’ve no discolored, raised skin to prove it so you’ll have to take my word for it, but my soul has scars.

things can go untended. like your heart.  i’ve remembered the body and the mind, but dissected my soul.  i’ve heard it said that everyone is just moving towards or away from jesus in this life.  and you know.  you know.

my heart.  has it grown hard enough not to care what god thinks?  i care what god thinks, i do – but there are verses in the bible that talk about god’s thoughts being higher than ours – you know those ones?  yeah.  the lovely, the high and lofty thoughts of god.

but what about when he whispers his thoughts in your ear?  how can i ascend to where god is?  he tells me, he bends low.  and the further on i go with him, the more unbelievable his requests become.  the thoughts of god are meant to disassemble my every lie it seems.  i’ve had to grow comfortable with being unexplainable.  with being the odd. with saying the strange out of the blue.  and it isn’t over yet.

a couple of years ago i started writing a book.  it’s proven to be a much more complicated process than i intended it to be.  it’s proven to be stake right through me and a tool for god to work in my life.  it’s killing me is what i’m trying to say.

and that’s as it should be, i guess.

cs lewis has said that god isn’t interested in pruning the bad branches off of us, but rather he’s set to cut the whole tree down.  this book is an axe in the hand of god.  for the past few months i haven’t looked at it at all, but that time is running out as the words come to me and tap me on the shoulder.  they’re waiting over there by the fireplace, waiting for stillness and waiting to be remembered.

it can feel like navel gazing, all this remembering of the past and the tears and the other side of that. but i’m not going to believe that lie this time.  if not now, when?  it’s important to write books.  it matters to put words around the first time i realized god existed.

like an old-fashioned testimony service, i think god is in the business of healing the unseen wounds.  i think he’s very uninterested in the sunday mornings that happen on the white blank page.  god has a smile on his face every time some brave soul stands up and makes the invisible visible.  when someone takes off their clothes and points out the soul scars and retells times from long ago.

it matters.

but that doesn’t mean it’s easy, dear ones.  all this being brave because i know god.  and i know it’s not easy for you, either.  i don’t want to spend a whole life making what has to be unmade.  lord, be gracious to me, because like the song says,

“be brave, dear one.  be changed or be undone.”

Posted in beauty, the past, time, writing | 3 Comments

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a few of my favorite things

reality is really pointing at its watch today.  it’s monday.  joshua back to work.  kids back to school.  laundry is in the dryer and homeschool lessons lay open on the table.  but happy new year.  happy is the man.  happy is the woman.

i am thankful.

last year brought answers to prayers.  this year is asking new questions, new prayers are being spoken under my breath.  i know now more than i’ve ever known that the answers will come in his time and in his way.  and i believe now more than ever that good enough is a thousand miles from grace.

i want nothing less than his will.

gratitude list ~ one thousand gifts ~ 1152 – 1174

gifts from jodi and frank
sun too bright in my eyes
clementines
bunk beds
detroit watering holes
birthday cake
people filling up the rooms
candles burning low
dinner at rebecca’s
downton abbey
adam always telling us no
sleepy ella
toes
blankets by the fire
coffee mug art
all things will unwind
stringer bell
school
driving back to apologize
christmas tree still up
good wine
necklaces for little girls
cozy socks

Posted in grace; free gifts, thankful, time | 3 Comments

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girl vs the world and her mother

“let’s go around the room and say whether or not we’d abort if we found out we had a child with down syndrome.  okay?”

i’m at a book club.  only two women in the room know my oldest child.  i came because they were reading this book and i was interested to see what they would think.  on purpose i hadn’t told our story because i wanted honesty ringing in my ears.  i hadn’t expected this.

i’m in the principal’s office with mazzy and we’re talking about having her start part time at abe’s school this year, next week.  we sign the papers and mazzy reads a bit from sugar snow and we discuss what her educational experience has looked like thus far.

“can i ask you a question?”

yes.  yes you can.

“do you always talk about mazzy this way in front of her?”

it takes me a minute to even understand what she means.  but then i see.  i’m so matter of fact about down syndrome and her capabilites, where she is lacking and what her strengths are.  i speak of her as i speak of myself.

but mazzy is not me.

mazzy is her own person and standing right in front of me is a woman willing to challenge me that maybe i’ve lost sight of that.

so when it gets to my turn, i try to keep up the game and act as if i don’t have a child with down syndrome.  so far only one woman has said she wouldn’t abort.  everyone else has hesitated for fear of judgement or stopped to explain why they couldn’t handle the responsibility and then said, but yeah, they probably would.

and so i start to talk and say no.  no i wouldn’t abort, but then my voice cracks a little and i end up starting to cry and i tell them all that i do have a child and how surreal it feels that they are sitting in a circle at their nice book club, drinking wine and talking about whether they’d end the life of a child like mine.

the girl who posed the question is totally embarrassed.  but that doesn’t stop them.

somehow, even after my confession, the circle keeps going ’round and it doesn’t matter. the truth hurts sometimes.

“i guess when you have a child with a disability, it’s a real temptation to lose your identity in them.  i know it’s not good for her and it’s not good for me.  bringing her here, trying out this school is letting go a little for me.”  

i’m crying again.  always when you scratch the surface of my heart is mazzy.

“but you’re right.  she’s getting older and i should think about how i’m speaking in front of her.  thank you.”

i don’t really know all the reasons that i guard her so fiercely.  maybe it was that conversation so long ago at the book club.  maybe it’s fear.  maybe it’s a mother’s heart on overdrive.  whatever the reasons are they don’t stop her from turning ten this month and they don’t stop the world from being the world.

mazzy.  blessings on you next week and in this world and in the next.

Posted in disability, mazzy, mothering | 14 Comments

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